|James may or may not have been|
|No matter what, whether James looked at him or not, whether James even gave the slightest notion of his presence my dad has always ALWAYS talked to James like he is a real person. A person who matters and is worth talking to.|
|No matter what's in Jeff's lap - a game, an ipad, a remote - when|
these two little people climb up, his lap is their lap, and that's
all that matters.
|The Farming Game for Kids.|
|Grandma makes us happy|
|Gramma! Ger'off of me! Ok fine, please stay. Stay forever.|
|Jeff and Lily at Hellfire|
|At a marching band competition. It was really cold that night and all James wanted was his Grandma.|
|So in love.|
Without “Mom” (Robin) and Grandpa Heuer, and without Grandma and Papa Grawe, James would not be this far. The day that James was diagnosed it seemed like my mom, Gramma in Texas, had read my mind. She told me that she would do everything in her power to make sure that we would be able to get James this therapy. To help us make sure that he would get the 40 hours a week that he needed, even if it meant her doing the therapy herself.
|Lily is Robin's clone. You look at pictures of Robin when she|
was little they look the same. And in some of their pictures
you have to wonder if Lily belongs to Robin or to me
We told Robin and she said that we know what we need to do. She called Steve (James’ ABA program director) and got the ball rolling. I don’t know where I was but Steve had sent us a list of supplies that we were going to need for our initial training, and I wouldn’t have had any of it if Robin hadn’t done it for me. We wouldn’t have therapists if Robin hadn’t been there.
|More Jeff and Lily at Hellfire|
|Papa and Lily working on the ranch.|
I’m so very lucky. To not share these memories that I have, that these four have given me, wouldn’t be right. Chris and I wouldn’t be the people we are if it weren’t for our parents. All of my and Chris’ siblings, all 13 of them, who have also supported us in so many unspoken ways, wouldn’t be who they are if our parents weren’t the people they are.
Hopefully these happy memories, giant triumphs, and miracles, will help show how much it helps to have the people around you support you in any hard situation. Be it illness, cancer, developmental disability, or so many others. Hopefully someone will be able to share how worth it it is to give up so much just to hear a little voice say “Papa.”
I have to stop now because I’m crying and I’ve run out of tissues. Thank you Mom and Dad and Jeff and Robin. Sorry I lost the list with your miracles on them. I promise that I didn’t forget them and I promise that I never will.
Another Update: Chris is now 29. We are nowhere near where we thought we'd be. We still don't see the light at the end of the tunnel but when we put our kids to bed at night, they're happy (well, most of the time).
We have a GoFundMe Campaign set up for James' Therapy. Please visit and donate.